Monday, February 11, 2013

Postural Tachycardia Syndrome

My daughter has just been diagnosed with  POTS. She has been suffering for quite a few months, but as a lot of the symptoms are similar to stress and anxiety this is what she has been treated for, but all to no avail.

She has had a brain scan, a camera down her throat, numerous ECG's, because she looks at things on the internet. To be honest, I had to tell her to stop as the doctor was getting fed up with her and once that happens, then they dismiss you at the door. Finally she was sent to a cardiologist, who recommended a tilt test. This is how she got her diagnosis. It is not life threatening, but it is debilitating and will come as flare ups. In all it has been a pretty stressful time for her and that doesn't help the condition either.

She is hoping to get a referral to a specialist who will be able to offer her advice, hope and coping mechanisms because during a bad day she cannot stand up. Exercise is out and surprisingly she has to drink lots of water and eat extra salt, so salt isn't all bad then.

Here's hoping she gets some answers soon.


Jaqueline Biggs said...

Hi Carol,
We are sorry to hear of your daughter's ill health. Chronic illnesses suck. She will have to take very good care of herself and start each day with an awareness of her body and how she feels.
Sending you hugs,
Jaq and Les

Carol said...

Thanks you lovely people. I will give her the hugs. I have just come back from having the kids because she ended up in A & E with severe chest pains tonight but this, apparently, is another of the symptoms. We are on a big learning curve at the moment and hopefully once she gets some medication she will have fewer symptoms and flare ups. x